Tuesday, August 2, 2011

Oh dear neglected blog. no one posts on you, and no one really reads when I do. *sigh* but so much has happened, maybe it should be chronicled. Just not sure where to begin.

Two weeks ago, I was diagnosed with twin twin transfusion syndrome on Tuesday about 10am. I didn't go back to work that day, so my poor replacement took over the job after only one day of training. (which consisted mostly of laughing) About 3pm, I got a call from Hollywood Presby in LA and was told to be there the next day at 9am. We booked a flight, hotel, rental car, and at 4am, headed to the airport. The tuition Chris had set aside for fall covered our expenses. I've got 3 weeks to figure out how to replace $2500...so not thinking about that at the moment...ok well clearly I am, but as of now, no longer thinking about it.

We met with Dr Chmait's team-
Ashley the sonographer--brilliant southern gal, with a slight noticeable dialect. Brilliant. Kind. Hilarious. I almost threw up on her a few times, then she stopped believing me that I was "ok" during the 3 hour sonogram and just started insisting it was time for a break.

Terry the nurse--this sounds odd, but seriously, it felt like I've always known this woman, and grew up with her as a 2nd mom. She was hilarious, kind, and insisting we text updates. She reminded me so much of Monica Ciotti. I instantly loved her.

Ramen Chmait, MD--brilliant, kind, all around human doctor. He took so much time to talk to us about the disease, and our options. Again, I feel like he wasn't just some doctor a few states away I had to come to, but someone that had known me forever, and was really concerned and determined to make this overwhelming and frightening disease a distant memory. A "remember when..." Ten years ago, twin twin transfusion was a death sentence...now thanks to his diligence, and desire to eradicate this awful condition, it's just another pregnancy road bump.

They operated Thursday, and the entire team was fabulous. They all told me that while I was under for a few moments that I ranted about chips and snoring, but I'm pretty sure they concocted that story pre-surgery and that the whole thing never happened ;) I am a light weight though, so it's highly likely that I would rant about chips. Hello, I'd not eaten in like 15 hours. FOOD people. FOOD.

The entire staff of Hollywood presby was amazing. There were a few communication struggles with varying ethnicities, dialects etc, but nothing we couldn't smooth over with gestures, smiles, thumbs up etc. They were the nicest rounds of nurses I've never had the pleasure of receiving care from to be honest. They ordered Chris meals as well, and gave us a private room, so that he could have a bed, and not just a foldout chair.

Friday, thanks to having no contractions, and my cervix still being in a "normal" range, we were discharged with modified bed rest instructions, two healthier babies, and cured of TTTS. We drove down Sunset Boulevard....all the while, Hugh Jackman singing in my mind. We got to Santa Monica beach, and spent a whole 5 minutes searching for shells for Ava. Then we spent a good 45 minutes going 6 miles down the 405. 30 of those I'm pretty sure were spent on the on-ramp of the 405....at 3pm. Let's just say dear 405, that you cured Chris of any desire he had gotten from wanting to live in CA.

The Bob Hope airport was very nice, and had someone wheel us to our gate. We got home about 1am Saturday, due to a layover in Vegas. I was exhausted. My mom has been taking the kids a few days every week to help give us time to rest. In the middle of all this madness, we've been moving and attempting to get our house ready to sell. What can I say, I live for a challange.

Due to my new bedrest restrictions, we've had to hire out the yard and house cleaning. Ok well kids are now climbing on me...later

1 comment:

Fike's Lives said...

I read it. I am glad to hear that things are going much better and that there was something they could do for the condition. Keep us updated!